Table 2 Gaps and opportunities for including people with lived experience (PWLE) of SCI in the review and editorial process

Gaps in representation due to lack of knowledge about proper procedures around privacy.

Anonymized self-reporting of disability status; culture shift toward inclusivity over past discriminatory practices.

Deeply ingrained, historical practices are hard to change.

Challenges in identifying and recruiting PWLE of SCI to participate in review and editorial processes.

Open avenues of recruitment to include advocacy and community-based organizations.

Provide compensation and resources to enable participation.

Privacy

Engagement with the community may be viewed as tokenistic.

Little precedent of level and type of reimbursement of reciprocity in the context of SCI.

Lack of professional credentials required to participate in review and editorial processes, limiting recruitment to academic channels.

Include reviewers from beyond the academic community to comment on relevance and usability.

Participant fatigue

Limited precedent