Skip to main content

Table 2 Data repositories that meet or potentially could meet the proposed requirements (in this article) for hosting non-public clinical trial data

From: Publishing descriptions of non-public clinical datasets: proposed guidance for researchers, repositories, editors and funding organisations

Repository name

Repository URL

Type of data hosted

Access controls

Example of non-public clinical dataset

UK Data Service—ReShare

http://reshare.ukdataservice.ac.uk

All

Requires account to request access to specific dataset

https://dx.doi.org/10.5255/UKDA-SN-851861

ICPSR

https://www.icpsr.umich.edu

All

Requires account to request access to specific dataset

http://doi.org/10.3886/ICPSR23580.v2

European Genome-phenome Archive (EGA)

https://www.ebi.ac.uk/ega

Genomics data

Specific to each study, some data are open

https://www.ebi.ac.uk/ega/datasets/EGAD00000000031

database of Genotypes and Phenotypes (dbGaP)

http://www.ncbi.nlm.nih.gov/gap

Human genotype and phenotype data

Requires account to request access to specific dataset

http://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000001

Harvard Dataverse

http://dataverse.harvard.edu

All

Specific to each study, some data are open

http://dx.doi.org/10.7910/DVN/25833

figshare

http://figshare.com

All

Specific to each study, some data are open

https://dx.doi.org/10.17608/k6.auckland.2003298

National Database for Clinical Trials related to Mental Illness (NDCT)

http://ndct.nimh.nih.gov

NIH funded data on any aspect of human mental health [includes National Database for Autism Research (NDAR) and Research Domain Criteria Database (RDoCdb)]

Requires account to request access to specific dataset

https://ndar.nih.gov/edit_collection.html?id=14

National Addiction & HIV Data Archive Program (NAHDAP)

http://www.icpsr.umich.edu/icpsrweb/NAHDAP/index.jsp

Drug addiction and HIV research data

Requires account to request access to specific dataset

http://doi.org/10.3886/ICPSR33581

Cancer Imaging Archive

http://www.cancerimagingarchive.net/

Anatomical imaging of human cancer

Requires completion of a DUA, some data are open

https://wiki.cancerimagingarchive.net/pages/viewpage.action?pageId=20643859

Synapse

http://sagebase.org/synapse

Biomedical data

Specific to each study, some data are open

https://dx.doi.org/10.7303/syn4993293